COPE Survey

Participant Surveys: COPE

The coronavirus disease 2019 (COVID-19) is having widespread and wide-ranging effects on All of Us participants and their communities. All of Us created the COVID-19 Participant Experience (COPE) survey to learn more about the way the pandemic is affecting people’s lives, particularly their mental health. The survey included questions about social distancing, general well-being, mood, stress, and more.

The first COPE survey was offered May 7, 2020. More surveys went out in May, June and July, and stayed up until late September. A shorter version of the survey will be available in November, December, and January.

In the past month, have recommendations for socially distancing caused stress for you?

Original source question text
Have recommendations for socially distancing caused stress for you?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

Thinking about your current social habits, in the last 5 days: I have stayed home all day.

Original source question text
Thinking about your current social habits, in the last 5 days: I have stayed home all day.

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have gone to my workplace or volunteer site that is outside my home.

Original source question text
Thinking about your current social habits, in the last 5 days: I have gone to my workplace or volunteer site that is outside my home.

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have attended social gatherings outside my home of MORE than 10 people.

Original source question text
Thinking about your current social habits, in the last 5 days: I have attended social gatherings, outside my home, of MORE than 10 people.

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have attended social gatherings outside my home of LESS than 10 people.

Original source question text
Thinking about your current social habits, in the last 5 days: I have attended social gatherings, outside my home, of LESS than 10 people.

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have gone on shopping trips or outings that were “just for fun”.

Original source question text
Thinking about your current social habits, in the last 5 days: I have gone on shopping trips or outings that were “just for fun”.

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have visited nursing homes or long-term care facilities (outside of work duties).

Original source question text
Thinking about your current social habits, in the last 5 days: I have visited nursing homes or long-term care facilities (outside of work duties).

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about your current social habits, in the last 5 days: I have been in close contact with someone who is in a risk group for COVID-19 (adults age 50+, people with chronic medical conditions like heart, lung, liver, or kidney disease, diabetes, high blood pressure, or a suppressed immune system). This includes someone inside or outside of your household.

Original source question text
Thinking about your current social habits, in the last 5 days: In the last 5 days, I have been in person-to-person contact with someone who is in a risk group (adults age 50+, people with chronic medical conditions like heart, lung, liver, or kidney disease, diabetes, high blood pressure or a suppressed immune system).

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Thinking about these activities in the last 5 days, my social interaction with people outside my home was…

Original source question text
Thinking about these activities in the last 5 days, my social interaction with people outside my home was

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

Now, thinking about the COVID-19 recommendations and mandates…How often in the past month are you doing the recommended pandemic hygiene, like washing hands frequently, avoiding touching your face, covering coughs, wearing a mask, and avoiding frequently touched surfaces in public places?

Original source question text
Now, thinking about the COVID-19 recommendations and mandates…How often in the past month are you doing the recommended pandemic hygiene, like washing hands frequently, avoiding touching your face, covering coughs, wearing a mask, and avoiding frequently touched surfaces in public places?

From which existing source was this question derived?
Michigan COVID-19 Social Distancing Survey

Year of Original Source
2020

Brief Description
The Michigan COVID-19 Social Distancing Survey was led by a team of researchers at Henry Ford Health System (HFHS) and administered online to Michigan residents. The survey is meant to assess Michigan residents’ support for and practice of social distancing measures during the COVID-19 pandemic.

URL
https://www.researchsquare.com/article/rs-47709/v1

In the past month, have you been sick for more than one day with a new illness related to COVID-19 or flu-like symptoms?

Original source question text
In the past 30 days, have you been sick for more than one day with an illness that included any of the following: fever, cough, sore throat, or runny or stuffy nose?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

options and variations noted below:

  • Approximate date of onset
    • Original source question text: Approximate date of onset
    • From which existing source was this question derived? CDC COVID-19 Community Survey Question Bank
    • Year of Original Source: 2020
    • Brief Description: The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.
    • URL: https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt
  • Which of the following symptoms did you have? (select all that apply)
    • Original source question text: Which of the following symptoms did you have?
    • From which existing source was this question derived? CDC COVID-19 Community Survey Question Bank
    • Year of Original Source: 2020
    • Brief Description: The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.
    • URL: https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

Have you EVER been near someone that you know, or suspect, had COVID-19 (such as co-workers, family members, or others)? Select all that apply.

Original source question text
Have you EVER been exposed to someone with documented or presumed COVID-19 infection (such as co-workers, family members, or others)? Please check all that apply.

From which existing source was this question derived?
COronavirus Pandemic Epidemiology (COPE) Consortium

Year of Original Source
2020

Brief Description
The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.

URL
https://pubmed.ncbi.nlm.nih.gov/32371551/

Do you think you have had COVID-19?

Original source question text
Do you think you have already had COVID-19, but were not tested?

From which existing source was this question derived?
COronavirus Pandemic Epidemiology (COPE) Consortium

Year of Original Source
2020

Brief Description
The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.

URL
https://pubmed.ncbi.nlm.nih.gov/32371551/

Were you tested for COVID-19 in the past month?

Original source question text
Were you tested for novel coronavirus (COVID-19)?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

options and variations noted below:

  • Was the test for COVID-19 positive?
    • Original source question text: Was the test for novel coronavirus positive?
    • From which existing source was this question derived? CDC COVID-19 Community Survey Question Bank
    • Year of Original Source: 2020
    • Brief Description: The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.
    • URL: https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt
  • How were you tested? Select all that apply.
    • Original source question text: How were you tested?
    • From which existing source was this question derived? CDC COVID-19 Community Survey Question Bank
    • Year of Original Source: 2020
    • Brief Description: The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.
    • URL: https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt
  • How many times were you tested?
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable

Were you tested for influenza (flu) in the past month?

Original source question text
Were you tested for influenza?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

In the past month, if you were sick with COVID-19 symptoms, how did you receive treatment(s)? Please select all that apply. Were you tested for COVID-19 in the past month?

Original source question text
What treatment are you (did you) receiving right now?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

options and variations noted below:

  • What breathing treatment did you receive? Please select all that apply.
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • What other breathing treatment did you receive? Please specify
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable

In the past 7 days, I thought about COVID-19 when I didn’t mean to.

Original source question text
In the past 7 days, I thought about Ebola when I didn’t mean to.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, I felt watchful or on-guard.

Original source question text
In the past 7 days, I felt watchful or on-guard.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, other things kept making me think about COVID-19.

Original source question text
In the past 7 days, other things kept making me think about Ebola.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, other things kept making me think about COVID-19.

Original source question text
In the past 7 days, other things kept making me think about Ebola.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, I was aware that I still had a lot of feelings about COVID-19, but I didn’t deal with them.

Original source question text
In the past 7 days, I was aware that I still had a lot of feelings about Ebola, but I didn’t deal with them.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, I tried not to think about COVID-19.

Original source question text
In the past 7 days, I tried not to think about Ebola.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past 7 days, I had trouble concentrating.

Original source question text
In the past 7 days, I had trouble concentrating.

From which existing source was this question derived?
Impact Event Scale Revised (IES-R-6)

Year of Original Source
2008

Brief Description
The Impact of Event Scale (IES) is meant to assess individual responses to stressful events, providing measurable guidance on when clinical diagnosis and/or treatment may be needed.

URL
https://www.ptsd.va.gov/professional/assessment/adult-sr/ies-r.asp

In the past month, how has the COVID-19 outbreak affected you? Please select all that apply.

Original source question text
How has the COVID-19 outbreak affected you?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

In the past month, have you experienced the following as a result of COVID-19? Select all that apply. In the past 7 days, other things kept making me think about COVID-19.

Original source question text
In the past two weeks have you experienced the following as a result of COVID-19?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

In the past month, have the following behaviors increased in your household? Select all that apply.

Original source question text
In the past week have the following behaviors increased in your household:

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

In the past month, to cope with social distancing and isolation, are you doing any of the following? Select all that apply.

Original source question text
To cope with social distancing and isolation, are you doing any of the following?

From which existing source was this question derived?
CDC COVID-19 Community Survey Question Bank

Year of Original Source
2020

Brief Description
The CDC COVID-19 Community Survey Question Bank, an online resource maintained by the U.S. Centers for Control and Prevention, contains community survey questions made available for use in COVID-19 research efforts.

URL
https://cde.nlm.nih.gov/formView?tinyId=Kcceysolt

Do you personally know someone who has died from COVID-19?

Original source question text
Do you know someone who has died from COVID-19?

From which existing source was this question derived?
Nurses’ Health Study COVID-19 Supplement

Year of Original Source
2020

Brief Description
The Nurses’ Health Study, led by researchers at Harvard University, is a study meant to assess and understand risk factors for major chronic diseases in women. Questionnaire-based methods have been developed to assess a variety of factors include diet and physical activity.

URL
https://www.nurseshealthstudy.org/researchers

options and variations noted below:

  • If yes, who do you know that’s died? Select all that apply.
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable

Choose the answer that best describes how you felt in the past month. In uncertain times, I usually expect the best.

Original source question text
In uncertain times, I usually expect the best.

From which existing source was this question derived?
Revised Life Orientation Test (LOT-R)

Year of Original Source
1994

Brief Description
The Life Orientation Test (LOT) was developed to assess individual differences in generalized optimism versus pessimism.

URL
https://pubmed.ncbi.nlm.nih.gov/7815302/

Choose the answer that best describes how you felt in the past month. In general, how happy are you?

Original source question text
In general, how happy are you?

From which existing source was this question derived?
UK Biobank

Year of Original Source
2011

Brief Description
The UK Biobank is a longitudinal, prospective cohort study in the United Kingdom that recruited over 500,000 people between the ages of 40-69 to investigate risk for multiple health conditions. Participants complete self-report and physical measures and provide saliva samples; data is also linked to electronic medical records. The UK Biobank has been cited extensively in biomedical research.

URL
https://www.ukbiobank.ac.uk/

Choose the answer that best describes how you felt in the past month. To what extent do you feel your life to be meaningful?

Original source question text
To what extent do you feel your life to be meaningful?

From which existing source was this question derived?
UK Biobank

Year of Original Source
2011

Brief Description
The UK Biobank is a longitudinal, prospective cohort study in the United Kingdom that recruited over 500,000 people between the ages of 40-69 to investigate risk for multiple health conditions. Participants complete self-report and physical measures and provide saliva samples; data is also linked to electronic medical records. The UK Biobank has been cited extensively in biomedical research.

URL
https://www.ukbiobank.ac.uk/

Not including yourself, how many other people live at home with you?

Original source question text
Not including yourself, how many other people live at home with you?

From which existing source was this question derived?
Behavioral Risk Factor Surveillance System (BRFSS)

Year of Original Source
2016

Brief Description
The Behavioral Risk Factor Surveillance System (BRFSS) is an annual national health-related telephone survey that was established in 1984. Each year, data is collected on approximately 400,000 adults across all 50 states about health-related risk behaviors, chronic health conditions, and use of preventive services. The BRFSS is the world’s largest continually conducted health survey. The questionnaire is available in both English and Spanish. Data from the survey is used to help with tracking health objectives, planning health programs, implementing activities for preventing disease and health promotion, and monitoring trends at the state and national level. There are many published studies describing analyses of BRFSS data and use of the questions for various research investigations.

URL
https://www.cdc.gov/brfss/

options and variations noted below:

  • Think of other people who live with you. How many are under the age of 18 years?
    • Original source question text: Think of other people who live with you. How many are under the age of 18 years?
    • From which existing source was this question derived? Behavioral Risk Factor Surveillance System (BRFSS)
    • Year of Original Source: 2016
    • Brief Description: The Behavioral Risk Factor Surveillance System (BRFSS) is an annual national health-related telephone survey that was established in 1984. Each year, data is collected on approximately 400,000 adults across all 50 states about health-related risk behaviors, chronic health conditions, and use of preventive services. The BRFSS is the world’s largest continually conducted health survey. The questionnaire is available in both English and Spanish. Data from the survey is used to help with tracking health objectives, planning health programs, implementing activities for preventing disease and health promotion, and monitoring trends at the state and national level. There are many published studies describing analyses of BRFSS data and use of the questions for various research investigations.
    • URL: https://www.cdc.gov/brfss/

What type of household do you live in?

Original source question text
What type of household do you live in?

From which existing source was this question derived?
Columbia COVID-19 Questionnaire

Year of Original Source
2020

Brief Description
The Columbia COVID-19 Questionnaire is an electronic self-reported data collection instrument for patients with confirmed or suspected COVID-19 infections. It was developed by researchers at Columbia University.

URL
http://www.columbiamedicine.org/divisions/kiryluk/study_covid19.php

What is your current employment status? Select all that apply.

Original source question text
What is your current employment status? Select all that apply.

From which existing source was this question derived?
Behavioral Risk Factor Surveillance System (BRFSS)

Year of Original Source
2016

Brief Description
The Behavioral Risk Factor Surveillance System (BRFSS), established in 1984, is an annual national health-related telephone survey. Each year, data is collected on approximately 400,000 adults across the United States. about health-related risk behaviors, chronic health conditions, and use of preventive services.

URL
https://www.cdc.gov/brfss/

Are you covered by health insurance or some other kind of health care plan?

Original source question text
Are you covered by health insurance or some other kind of health care plan?

From which existing source was this question derived?
National Health and Nutrition Examination Survey (NHANES)

Year of Original Source
2017

Brief Description
The National Health and Nutrition Examination Survey (NHANES) is a program conducted by the National Center for Health Statistics that aims to assess the health and nutritional status of the United States population. Approximately 5,000 participants from different counties across the nation complete the NHANES interview each year. Specific survey components include demographic, socioeconomic, dietary, and health-related questions. Data from the NHANES has helped inform an understanding of the prevalence of diseases and risk factors associated with the diseases. The survey data are used in health science and epidemiological studies and help shape public health policy and decisions about health programs and services.

URL
https://www.cdc.gov/nchs/nhanes/

options and variations noted below:

  • If yes, are you currently covered by any of the following types of health insurance or health care plans? Select all that apply.

Are you currently on chemotherapy or immunotherapy?

Original source question text
Are you currently on chemotherapy or immunotherapy?

From which existing source was this question derived?
COronavirus Pandemic Epidemiology (COPE) Consortium

Year of Original Source
2020

Brief Description
The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.

URL
https://pubmed.ncbi.nlm.nih.gov/32371551/

Do you regularly take immunosuppressant medications (including steroids, methotrexate, biologic agents)?

Original source question text
Do you regularly take immunosuppressant medications (including steroids, methotrexate, biologic agents)?

From which existing source was this question derived?
COronavirus Pandemic Epidemiology (COPE) Consortium

Year of Original Source
2020

Brief Description
The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.

URL
https://pubmed.ncbi.nlm.nih.gov/32371551/

What is your current marital status?

Original source question text
What is your current marital status?

From which existing source was this question derived?
Behavioral Risk Factor Surveillance System (BRFSS)

Year of Original Source
2016

Brief Description
The Behavioral Risk Factor Surveillance System (BRFSS) is an annual national health-related telephone survey that was established in 1984. Each year, data is collected on approximately 400,000 adults across all 50 states about health-related risk behaviors, chronic health conditions, and use of preventive services. The BRFSS is the world’s largest continually conducted health survey. The questionnaire is available in both English and Spanish. Data from the survey is used to help with tracking health objectives, planning health programs, implementing activities for preventing disease and health promotion, and monitoring trends at the state and national level. There are many published studies describing analyses of BRFSS data and use of the questions for various research investigations.

URL
https://www.cdc.gov/brfss/

Are you currently pregnant?

Original source question text
Not applicable

From which existing source was this question derived?
This question was developed specifically for use within the All of Us Research Program.

Year of Original Source
Not applicable

Brief Description
Not applicable

URL
Not applicable

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to help you if you were confined to bed

Original source question text
Someone to help you if you were confined to bed

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to take you to the doctor if you needed it

Original source question text
Someone to take you to the doctor if you needed it

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to prepare your meals if you were unable to do it yourself

Original source question text
Someone to prepare your meals if you were unable to do it yourself

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to help with daily chores if you were sick

Original source question text
Someone to help with daily chores if you were sick

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to have a good time with

Original source question text
Someone to have a good time with

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to turn to for suggestions about how to deal with a personal problem

Original source question text
Someone to turn to for suggestions about how to deal with a personal problem

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone who understands your problems

Original source question text
Someone who understands your problems

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to love and make you feel wanted

Original source question text
Someone to love and make you feel wanted

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to confide in or talk to about yourself or your problems

Original source question text
Someone to confide in or talk to about yourself or your problems

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

Choose the answer that best describes how often you can find this kind of support in the past month. Someone to do things with to help you get your mind off things

Original source question text
Someone to do things with to help you get your mind off things

From which existing source was this question derived?
RAND Medical Outcomes Study Social Support Survey

Year of Original Source
1993

Brief Description
The Social Support Survey instrument was developed for patients in the Medical Outcomes Study (MOS), a two-year study of patients with chronic conditions.

URL
https://www.rand.org/health-care/surveys_tools/mos/social-support.html

In the past 2 weeks, how often have you been bothered by the following problem? Feeling nervous, anxious, or on edge

Original source question text
How often have they been bothered by the following over the past 2 weeks? Feeling nervous, anxious, or on edge

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Not being able to stop or control worrying

Original source question text
How often have they been bothered by the following over the past 2 weeks? Not being able to stop or control worrying

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Worrying too much about different things

Original source question text
How often have they been bothered by the following over the past 2 weeks? Worrying too much about different things

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Trouble relaxing

Original source question text
How often have they been bothered by the following over the past 2 weeks? Trouble relaxing

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Being so restless that it’s hard to sit still

Original source question text
How often have they been bothered by the following over the past 2 weeks? Being so restless that it’s hard to sit still

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Becoming easily annoyed or irritable

Original source question text
How often have they been bothered by the following over the past 2 weeks? Becoming easily annoyed or irritable

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by the following problem? Feeling afraid as if something awful might happen

Original source question text
How often have they been bothered by the following over the past 2 weeks? Feeling afraid as if something awful might happen

From which existing source was this question derived?
Generalised Anxiety Disorder Assessment (GAD-7)

Year of Original Source
2006

Brief Description
GAD-7 is a self-administered patient questionnaire used as a screening tool and severity measure for generalized anxiety disorder (GAD).

URL
https://pubmed.ncbi.nlm.nih.gov/16717171/

In the past 2 weeks, how often have you been bothered by: Little interest or pleasure in doing things

Original source question text
How often have they been bothered by the following over the past 2 weeks? Little interest or pleasure in doing things

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Feeling down, depressed, or hopeless

Original source question text
How often have they been bothered by the following over the past 2 weeks? Feeling down, depressed, or hopeless

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Trouble falling or staying asleep, or sleeping too much

Original source question text
How often have they been bothered by the following over the past 2 weeks? Trouble falling or staying asleep, or sleeping too much

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Feeling tired or having little energy

Original source question text
How often have they been bothered by the following over the past 2 weeks? Feeling tired or having little energy

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Poor appetite or overeating

Original source question text
How often have they been bothered by the following over the past 2 weeks? Poor appetite or overeating

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Feeling bad about yourself or that you are a failure or have let yourself or your family down

Original source question text
How often have they been bothered by the following over the past 2 weeks? Feeling bad about yourself or that you are a failure or have let yourself or your family down

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Trouble concentrating on things, such as reading the newspaper or watching television

Original source question text
How often have they been bothered by the following over the past 2 weeks? Trouble concentrating on things, such as reading the newspaper or watching television

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Moving or speaking so slowly that other people could have noticed? Or the opposite – being so fidgety or restless that you have been moving around a lot more than usual

Original source question text
How often have they been bothered by the following over the past 2 weeks? Moving or speaking so slowly that other people could have noticed? Or the opposite – being so fidgety or restless that you have been moving around a lot more than usual

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the past 2 weeks, how often have you been bothered by: Thoughts that you would be better off dead or of hurting yourself in some way

Original source question text
How often have they been bothered by the following over the past 2 weeks? Thoughts that you would be better off dead or of hurting yourself in some way

From which existing source was this question derived?
Patient Health Questionnaire (PHQ)-9

Year of Original Source
2001

Brief Description
PHQ-9 is a self-administered diagnostic instrument for depression.

URL
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/

In the last month, how often have you been upset because of something that happened unexpectedly?

Original source question text
In the last month, how often have you been upset because of something that happened unexpectedly?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt that you were unable to control the important things in your life?

Original source question text
In the last month, how often have you felt that you were unable to control the important things in your life?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt nervous and “stressed”?

Original source question text
In the last month, how often have you felt nervous and “stressed”?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt confident about your ability to handle your personal problems?

Original source question text
In the last month, how often have you felt confident about your ability to handle your personal problems?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt that things were going your way?

Original source question text
In the last month, how often have you felt that things were going your way?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you found that you could not cope with all the things that you had to do?

Original source question text
In the last month, how often have you found that you could not cope with all the things that you had to do?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you been able to control irritations in your life?

Original source question text
In the last month, how often have you been able to control irritations in your life?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt that you were on top of things?

Original source question text
In the last month, how often have you felt that you were on top of things?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you been angered because of things that were outside of your control?

Original source question text
In the last month, how often have you been angered because of things that were outside of your control?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

In the last month, how often have you felt difficulties were piling up so high that you could not overcome them?

Original source question text
In the last month, how often have you felt difficulties were piling up so high that you could not overcome them?

From which existing source was this question derived?
Perceived Stress Scale (PSS)

Year of Original Source
1994

Brief Description
The Perceived Stress Scale assesses the degree to which people perceive their lives to be stressful.

URL
https://pubmed.ncbi.nlm.nih.gov/6668417/

Think about all the vigorous activities that you did in the last 7 days. Vigorous physical activities refer to activities that take hard physical effort and make you breathe much harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time. During the last 7 days, did you do vigorous physical activities like heavy lifting, digging, aerobics, or fast bicycling?

Original source question text
Think about all the vigorous activities that you did in the last 7 days. Vigorous physical activities refer to activities that take hard physical effort and make you breathe much harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time. During the last 7 days, did you do vigorous physical activities like heavy lifting, digging, aerobics, or fast bicycling?

From which existing source was this question derived?
International Physical Activity Questionnaires (IPAQ)

Year of Original Source
2002

Brief Description
The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.

URL
www.ipaq.ki.se

options and variations noted below:

  • How many days per week? plans? Select all that apply.
    • Original source question text: How many days per week?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Hours Per Day
    • Original source question text: How much time did you usually spend doing vigorous physical activities on one of those days (hours per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Minutes Per Day
    • Original source question text: How much time did you usually spend doing vigorous physical activities on one of those days (minutes per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se

Think about all the moderate activities that you did in the last 7 days. Moderate activities refer to activities that take moderate physical effort and make you breathe somewhat harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time. During the last 7 days, did you do moderate physical activity like carrying light loads, bicycling at a regular pace, or doubles tennis?

Original source question text
Think about all the moderate activities that you did in the last 7 days. Moderate activities refer to activities that take moderate physical effort and make you breathe somewhat harder than normal. Think only about those physical activities that you did for at least 10 minutes at a time. During the last 7 days, did you do moderate physical activity like carrying light loads, bicycling at a regular pace, or doubles tennis?

From which existing source was this question derived?
International Physical Activity Questionnaires (IPAQ)

Year of Original Source
2002

Brief Description
The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.

URL
www.ipaq.ki.se

options and variations noted below:

  • How many days per week? plans? Select all that apply.
    • Original source question text: How many days per week?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Hours Per Day
    • Original source question text: How much time did you usually spend doing moderate physical activities on one of those days (hours per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Minutes Per Day
    • Original source question text: How much time did you usually spend doing moderate physical activities on one of those those days (minutes per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se

Think about the time you spent walking in the last 7 days. This includes at work and at home, walking to travel from place to place, and any other walking that you have done solely for recreation, sport, exercise, or leisure. During the last 7 days, did you walk for at least 10 minutes at a time?

Original source question text
Think about the time you spent walking in the last 7 days. This includes at work and at home, walking to travel from place to place, and any other walking that you have done solely for recreation, sport, exercise, or leisure. During the last 7 days, did you walk for at least 10 minutes at a time?

From which existing source was this question derived?
International Physical Activity Questionnaires (IPAQ)

Year of Original Source
2002

Brief Description
The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.

URL
www.ipaq.ki.se

options and variations noted below:

  • How many days per week? plans? Select all that apply.
    • Original source question text: How many days per week?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Hours Per Day
    • Original source question text: How much time did you usually spend walking on one of those days (hours per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Minutes Per Day
    • Original source question text: How much time did you usually spend walking on one of those days (minutes per day)?
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se

The last question is about the time you spent sitting on weekdays during the last 7 days. Include time spent at work, at home, while doing course work and during leisure time. This may include time spent sitting at a desk, visiting friends, reading, or sitting or lying down to watch television. During the last 7 days, how much time did you spend sitting on a weekday?

Original source question text
The last question is about the time you spent sitting on weekdays during the last 7 days. Include time spent at work, at home, while doing course work and during leisure time. This may include time spent sitting at a desk, visiting friends, reading, or sitting or lying down to watch television. During the last 7 days, how much time did you spend sitting on a weekday?

From which existing source was this question derived?
International Physical Activity Questionnaires (IPAQ)

Year of Original Source
2002

Brief Description
The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.

URL
www.ipaq.ki.se

options and variations noted below:

  • Hours Per Day
    • Original source question text: Hours per day
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se
  • Minutes Per Day
    • Original source question text: Minutes per day
    • From which existing source was this question derived? International Physical Activity Questionnaires (IPAQ)
    • Year of Original Source: 2002
    • Brief Description: The purpose of the IPAQ is to provide common instruments that can be used to obtain internationally comparable data on health–related physical activity.
    • URL: www.ipaq.ki.se

I lack companionship

Original source question text
I lack companionship

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as
feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

There is no one I can turn to

Original source question text
There is no one I can turn to

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

I am an outgoing person

Original source question text
I am an outgoing person

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

I feel left out

Original source question text
I feel left out

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

I feel isolated from others

Original source question text
I can find companionship when I want it

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

I am unhappy being so withdrawn

Original source question text
I am unhappy being so withdrawn

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

People are around me but not with me

Original source question text
People are around me but not with me

From which existing source was this question derived?
UCLA Loneliness Scale

Year of Original Source
1978

Brief Description
The UCLA Loneliness Scale is a 20-item scale designed to measure one’s subjective feelings of loneliness as well as feelings of social isolation.

URL
https://pubmed.ncbi.nlm.nih.gov/660402/

Do you smoke?

Original source question text
In the past month: Did you smoke tobacco/nicotine (including cigarettes, cigar, cigarillos, pipes, hookah) every day, some days, or not at all?

From which existing source was this question derived?
COronavirus Pandemic Epidemiology (COPE) Consortium

Year of Original Source
2020

Brief Description
The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.

URL
https://pubmed.ncbi.nlm.nih.gov/32371551/

options and variations noted below:

  • How many years since you last smoked?
    • Original source question text: How long has it been since you last smoked?
    • From which existing source was this question derived? COronavirus Pandemic Epidemiology (COPE) Consortium
    • Year of Original Source: 2020
    • Brief Description: The COronavirus Pandemic Epidemiology (COPE) consortium, a community of epidemiology researchers from the United States and United Kingdom, was established in response to the coronavirus/COVID-19 pandemic. The consortium has developed resources, including mobile applications, to collect and assess COVID-19 risk factors, symptoms, and outcomes.
    • URL: https://pubmed.ncbi.nlm.nih.gov/32371551/
  • Enter the number of weeks
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Enter the number of months
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Enter the number of years
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable

In the past month: Did someone in your home smoke tobacco/nicotine (including cigarettes, cigar, cigarillos, pipes, hookah) every day, some days, or not at all?

Original source question text
Not applicable

From which existing source was this question derived?
This question was developed specifically for use within the All of Us Research Program.

Year of Original Source
Not applicable

Brief Description
Not applicable

URL
Not applicable

Have you ever used an electronic nicotine product, even one or two times? (Electronic nicotine products include e-cigarettes, vape pens, hookah pens, personal vaporizers and mods, e-cigars, e-pipes, and e-hookahs.)

Original source question text
In the past month: Did you use any type of electronic nicotine product? This includes e- cigarettes, vape pens, hookah pens, personal vaporizers and mods, e-cigars, e-pipes, and e-hookahs.

From which existing source was this question derived?
Population Assessment of Tobacco and Health Study (PATH)

Year of Original Source
2015

Brief Description
The Population Assessment of Tobacco and Health (PATH) Study is a national, longitudinal cohort study examining tobacco use and its effect on health. The study includes approximately 46,000 participants, ages 12 and older. Interviewers meet with participants annually for at least 3 years. The study questionnaire is available in both English and Spanish. Results from the study will be used to guide the Food and Drug Administration’s (FDA’s) regulatory decisions and actions.

URL
https://pathstudyinfo.nih.gov/

options and variations noted below:

  • How long has it been since you last used an electronic nicotine product?
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Enter the number of weeks
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Enter the number of months
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Enter the number of years
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable

How often did you have a drink containing alcohol in the past year?

Original source question text
In the past month: How often do you have a drink containing alcohol?

From which existing source was this question derived?
Alcohol Use Disorders Identification Test-C (AUDIT-C)

Year of Original Source
1998

Brief Description
The Alcohol Use Disorders Identification Test-Concise (AUDIT-C) is a brief alcohol screening instrument that reliably identifies persons who are hazardous drinkers or have active alcohol use disorders (including alcohol abuse or dependence). The AUDIT-C is a modified version of the 10 question AUDIT instrument.

URL
https://cde.drugabuse.gov/instrument/f229c68a-67ce-9a58-e040-bb89ad432be4

options and variations noted below:

  • On a typical day when you drink, how many drinks do you have?
    • Original source question text: In the past month: How many standard drinks containing alcohol do you have on a typical day?
    • From which existing source was this question derived? Alcohol Use Disorders Identification Test-C (AUDIT-C)
    • Year of Original Source: 1998
    • Brief Description: The Alcohol Use Disorders Identification Test-Concise (AUDIT-C) is a brief alcohol screening instrument that reliably identifies persons who are hazardous drinkers or have active alcohol use disorders (including alcohol abuse or dependence). The AUDIT-C is a modified version of the 10 question AUDIT instrument.
    • URL: https://cde.drugabuse.gov/instrument/f229c68a-67ce-9a58-e040-bb89ad432be4
  • How often did you have six or more drinks on one occasion in the past year?
    • Original source question text: In the past month: How often do you have six or more drinks containing alcohol on one occasion?
    • From which existing source was this question derived? Alcohol Use Disorders Identification Test-C (AUDIT-C)
    • Year of Original Source: 1998
    • Brief Description: The Alcohol Use Disorders Identification Test-Concise (AUDIT-C) is a brief alcohol screening instrument that reliably identifies persons who are hazardous drinkers or have active alcohol use disorders (including alcohol abuse or dependence). The AUDIT-C is a modified version of the 10 question AUDIT instrument.
    • URL: https://cde.drugabuse.gov/instrument/f229c68a-67ce-9a58-e040-bb89ad432be4

In your LIFETIME, which of the following substances have you ever used?

Original source question text
In the past month, have you used any of the following drugs? Select all that apply.

From which existing source was this question derived?
NIDA Modified-ASSIST (NM-ASSIST)

Year of Original Source
2010

Brief Description
he National Institute on Drug Abuse-Modified Alcohol, Smoking, and Substance Involvement Screening Test (NM Assist) was adapted in 2009 from the World Health Organization Alcohol, Smoking and Substance Involvement Screening Test (ASSIST), Version 3.0, which was developed to detect and manage substance abuse in primary and general medical care settings. The NM-ASSIST can be used with people aged 18 and older and is designed to be administered to patients by clinicians. The American Psychiatric Association has adapted the tool for self- or parent-administration in different age groups for use in clinical or research settings.

URL
https://www.drugabuse.gov/publications/resource-guide-screening-drug-use-in-general-medical-settings/nida-quick-screen

options and variations noted below:

  • How often did you use…? Display for each option selected.
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Did your use include smoking…? Display for each option selected.
    • Original source question text: Not applicable
    • From which existing source was this question derived? This question was developed specifically for use within the All of Us Research Program.
    • Year of Original Source: Not applicable
    • Brief Description: Not applicable
    • URL: Not applicable
  • Did using the same amount of a drug lead to it having less of an effect as it did before? Display for each option selected.
    • Original source question text: Do you think you have used more or less of the (substance selected) in the past month than you used to?
    • From which existing source was this question derived? Texas Christian University (TCU) Drug Screen 5
    • Year of Original Source: 2014
    • Brief Description: The Texas Christian University (TCU) Drug Screen 5 was developed to assess severity of drug use problems and identify whether substance use treatment may be suitable for individuals entering a corrections facility through the U.S. criminal justice system.
    • URL: https://ibr.tcu.edu/forms/tcu-drug-screen/

I look for creative ways to alter difficult situations

Original source question text
Please select the response that best reflects your behavior in the past month. I look for creative ways to alter difficult situations.

From which existing source was this question derived?
Brief Resilient Coping Scale

Year of Original Source
2004

Brief Description
The Brief Resilience Coping Scale is a 4-item measure designed to identify tendencies to cope with stress in a highly adaptive manner.

URL
https://pubmed.ncbi.nlm.nih.gov/14994958/

Regardless of what happens to me, I believe I can control my reaction to it

Original source question text
Please select the response that best reflects your behavior in the past month. Regardless of what happens to me, I believe I can control my reaction to it.

From which existing source was this question derived?
Brief Resilient Coping Scale

Year of Original Source
2004

Brief Description
The Brief Resilience Coping Scale is a 4-item measure designed to identify tendencies to cope with stress in a highly adaptive manner.

URL
https://pubmed.ncbi.nlm.nih.gov/14994958/

I believe I can grow in positive ways by dealing with difficult situations

Original source question text
Please select the response that best reflects your behavior in the past month. I believe I can grow in positive ways by dealing with difficult situations.

From which existing source was this question derived?
Brief Resilient Coping Scale

Year of Original Source
2004

Brief Description
The Brief Resilience Coping Scale is a 4-item measure designed to identify tendencies to cope with stress in a highly adaptive manner.

URL
https://pubmed.ncbi.nlm.nih.gov/14994958/

I actively look for ways to replace the losses I encounter in life

Original source question text
Please select the response that best reflects your behavior in the past month. I actively look for ways to replace the losses I encounter in life.

From which existing source was this question derived?
Brief Resilient Coping Scale

Year of Original Source
2004

Brief Description
The Brief Resilience Coping Scale is a 4-item measure designed to identify tendencies to cope with stress in a highly adaptive manner.

URL
https://pubmed.ncbi.nlm.nih.gov/14994958/

You are treated with less courtesy than other people are

Original source question text
In your day-to-day life, how often did this happen to you during the past month? You are treated with less courtesy than other people are.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

You are treated with less respect than other people are

Original source question text
In your day-to-day life, how often did this happen to you during the past month? You are treated with less respect than other people are.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

You receive poorer service than other people at restaurants or stores

Original source question text
In your day-to-day life, how often did this happen to you during the past month? You receive poorer service than other people at restaurants or stores.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

People act as if they think you are not smart

Original source question text
In your day-to-day life, how often did this happen to you during the past month? People act as if they think you are not smart.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

People act as if they are afraid of you

Original source question text
In your day-to-day life, how often did this happen to you during the past month? People act as if they are afraid of you.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

People act as if they think you are dishonest

Original source question text
In your day-to-day life, how often did this happen to you during the past month? People act as if they think you are dishonest.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

People act as if they’re better than you are

Original source question text
In your day-to-day life, how often did this happen to you during the past month? People act as if they’re better than you are.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

You are called names or insulted

Original source question text
In your day-to-day life, how often did this happen to you during the past month? You are called names or insulted.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

You are threatened or harassed

Original source question text
In your day-to-day life, how often did this happen to you during the past month? You are threatened or harassed.

From which existing source was this question derived?
Everyday Discrimination Scale

Year of Original Source
1997

Brief Description
The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.

URL
https://scholar.harvard.edu/davidrwilliams/node/32397

options and variations noted below:

  • What do you think is the main reason for these experiences? Select all that apply.
    • Original source question text: What do you think is the main reason for these experiences? Select all that apply.
    • From which existing source was this question derived? Everyday Discrimination Scale
    • Year of Original Source: 1997
    • Brief Description: The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.
    • URL: https://scholar.harvard.edu/davidrwilliams/node/32397
  • Other reason – please specify.
    • Original source question text: Other reason – please specify.
    • From which existing source was this question derived? Everyday Discrimination Scale
    • Year of Original Source: 1997
    • Brief Description: The Everyday Discrimination Scale was developed to assess racial differences in physical and mental health.
    • URL: https://scholar.harvard.edu/davidrwilliams/node/32397