All of Us Publications

Implementing a universal informed consent process for the All of Us Research Program

Doerr, Megan and Grayson, Shira and Suver, Christine and Wilbanks, John and Wagner, Jennifer, Implementing a Universal Informed Consent Process for the All of Us Research Program (July 27, 2018). Forthcoming, Pacific Symposium on Biocomputing, (Author Preprint). Available at SSRN: https://ssrn.com/abstract=3277573 or http://dx.doi.org/10.2139/ssrn.3277573

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Khodyakov D, Bromley E, Evans SK, Sieck K. Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program [Internet]. 2018 [cited 2019 May 23]. Available from: https://www.rand.org/pubs/research_reports/RR2578.html

Development of Participant Provided Information Modules for the All of Us Research Program

Cronin RM, Jerome RN, Mapes B, Andrade R, Johnston R et al. Development of the Initial Surveys for the All of Us Research Program. Epidemiology. 2019 Apr 29. doi: 10.1097/EDE.0000000000001028.

The New Era of Precision Population Health: Insights for the All of Us Research Program and Beyond

Lyles CR1, Lunn MR, Obedin-Maliver J, Bibbins-Domingo K. The new era of precision population health: insights for the All of Us Research Program and beyond.J Transl Med. 2018 Jul 27;16(1):211. doi: 10.1186/s12967-018-1585-5.

Implementation of Informatics to Support All of Us Enrollment Activities

“Turner SP, Pompea ST, Williams KL, Kraemer DA Jr, Sholle ET, Chen C, Cole CL, Kaushal R, Campion TR Jr. Implementation of Informatics to Support the NIH All of Us Research Program in a Healthcare Provider Organization. AMIA Jt Summits Transl Sci Proc. 2019; 2019: 602–609. (https://www.ncbi.nlm.nih.gov/pubmed/31259015) 

Campion TR Jr, Pompea ST, Turner SP, Sholle ET, Cole CL, Kaushal R. A Method for Integrating Healthcare Provider Organization and Research Sponsor Systems and Workflows to Support Large-Scale Studies. AMIA Jt Summits Transl Sci Proc. 2019; 2019: 648–655. (https://www.ncbi.nlm.nih.gov/pubmed/31259020)”