Research Projects Directory

Research Projects Directory

9,423 active projects

This information was updated 2/27/2024

The Research Projects Directory includes information about all projects that currently exist in the Researcher Workbench to help provide transparency about how the Workbench is being used. Each project specifies whether Registered Tier or Controlled Tier data are used.

Note: Researcher Workbench users provide information about their research projects independently. Views expressed in the Research Projects Directory belong to the relevant users and do not necessarily represent those of the All of Us Research Program. Information in the Research Projects Directory is also cross-posted on AllofUs.nih.gov in compliance with the 21st Century Cures Act.

24 projects have 'black' in the project title
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Black women and pain disclosure

How do Black women disclose pain and trauma as a result of cultural coping? How are their disclosure patterns impacted by their familial background? Black women upon experiencing pain and trauma are more likely to diminish the impact they experience…

Scientific Questions Being Studied

How do Black women disclose pain and trauma as a result of cultural coping? How are their disclosure patterns impacted by their familial background? Black women upon experiencing pain and trauma are more likely to diminish the impact they experience because of various psychological and ecological factors. As a result, Black women often rely on a form of cultural coping mechanisms. Within the medical field, black women are shown to not have their perception and report of pain taken seriously in comparison to white women and often face serious health complications. The perpetuations of these associated stigmas hinder the communication the communication of their pain and trauma by enabling continued discrimination, prejudices, and othering. The cultural coping mechanisms that black women turn to, as well as the help-seeking behaviors that are exhibited, is largely dependent upon their social and familial context.

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

Data from the All of Us [AoU] Research Hub will be used to begin the first phase of examination of pain/trauma disclosure, cultural coping, and help-seeking behaviors among black women AoU participants. A thematic analysis of the categorical data will allow for the identification of significant determinants that may lead Black women to turn to cultural coping and help-seeking behaviors. Python software will be used to analyze this categorical data. Results from the first phase of this examination will support a future endeavor that seeks to explore the meaning-making black women arrive at when engaged in cultural coping and help-seeking behaviors. The second phase, if supported by the first phase’s analysis, will be composed of semi-structured interviews, and use interpretative phenomenological analysis to better understand the meaning and themes that emerge from this qualitative data.

Anticipated Findings

It is anticipated that black women will have follow destructive pain disclosure patterns as a result of cultural coping. Further, there will be a trend which indicates that within their family’s pain and health problems aren’t really discussed but ignored instead which causes the emergence of certain pain disclosure patterns. This project not only seeks to identify root causes of mental and physical health concerns that black women may face but raise to the collective conscience that issues ignored or pushed into a dark corner can escalate in something that can be damaging to one’s functioning. This project seeks to acknowledge within the community of black women that such experiences aren’t abnormal, and they shouldn’t diminish their own difficulties in comparison to others nor should they ignore their pain and trauma for what it truly is. New coping mechanisms need to be addressed and those formed as a result of historical and racialized violence need not be perpetuated any longer.

Demographic Categories of Interest

  • Race / Ethnicity
  • Access to Care

Data Set Used

Registered Tier

Research Team

Owner:

  • Jahzara Ming - Undergraduate Student, Xavier University of Louisiana

Discrimination & Mental health among black men and women with HIV

How does discrimination affect mental health among black men and women (cis and transgendered) living with HIV? Does having a strong religious feeling or belief modify the relationship between perceived discrimination and mental health? How does this differ across sub-groups…

Scientific Questions Being Studied

How does discrimination affect mental health among black men and women (cis and transgendered) living with HIV? Does having a strong religious feeling or belief modify the relationship between perceived discrimination and mental health? How does this differ across sub-groups (e.g., gender, sexual orientation, and age)

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

Retrospective study

Anticipated Findings

Discrimination affect mental health among black men and women (cis and transgendered) living with HIV

Demographic Categories of Interest

  • Race / Ethnicity

Data Set Used

Registered Tier

Research Team

Owner:

Depression and substance among Black women with HIV

What is the prevalence of depression among Black women who living with HIV? What factors at multiple levels impact Black women's depression status?

Scientific Questions Being Studied

What is the prevalence of depression among Black women who living with HIV?
What factors at multiple levels impact Black women's depression status?

Project Purpose(s)

  • Educational
  • Other Purpose (This is the first project that I am using to practice AoU data. )

Scientific Approaches

I would use descriptive analysis to identify depression among Black women living with HIV. Subgroup analyses will be employed. Furthermore, multiple regression models will be employed.

Anticipated Findings

Identify prevalence of depression among Black women who live with HIV.
Explore factors that may associated with depression among Black women living with HIV.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Sex at Birth
  • Gender Identity
  • Sexual Orientation
  • Geography
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Controlled Tier

Research Team

Owner:

  • Chen Zhang - Early Career Tenure-track Researcher, University of Rochester
  • Caitlin Dreisbach - Early Career Tenure-track Researcher, University of Rochester

SDoH and Black Women in the Deep South

I am exploring this data to generate a research question regarding the impact of the social determinants of health care on Breast Cancer. I hope to examine the current state of widespread access to care in the Deep South. I…

Scientific Questions Being Studied

I am exploring this data to generate a research question regarding the impact of the social determinants of health care on Breast Cancer. I hope to examine the current state of widespread access to care in the Deep South. I would like to examine how the SDOH plays a role in the treatment outcomes among black women.

Project Purpose(s)

  • Disease Focused Research (Breast Cancer)
  • Population Health
  • Social / Behavioral

Scientific Approaches

I plan to use demographic data, as well as reported cases of breast cancer to answer this question. Survey questions regarding social determinants of health will also be considered during data analysis.

Anticipated Findings

The anticipated findings are that limited access to care is likely also a major factor in the health outcomes in this population. If true, this would inform interventions in this area.

Demographic Categories of Interest

  • Race / Ethnicity
  • Geography
  • Access to Care

Data Set Used

Controlled Tier

Research Team

Owner:

  • Lauren Evans - Graduate Trainee, Xavier University of Louisiana

Mental Wellbeing in the Black Community

As part of an international organization of black college-educated women across a spectrum of lived experiences, we intend to explore how the social determinants of health impact mental health and well-being among Black Americans. We will also attempt to quantify…

Scientific Questions Being Studied

As part of an international organization of black college-educated women across a spectrum of lived experiences, we intend to explore how the social determinants of health impact mental health and well-being among Black Americans. We will also attempt to quantify the differences between their experiences and those of the dominant group. Understanding disparities in this domain, will help us prioritize actions for social, political, and organizational advocacy and programming to resolve hypothesized disparities.

Project Purpose(s)

  • Disease Focused Research (psychiatric disorders)
  • Population Health
  • Social / Behavioral

Scientific Approaches

We will use the conditions, drug exposures, healthcare access and utilization, lifestyle, overall health, personal and family history, and social determinants of health surveys to extract data for black populations. Once the analysis methods available are known, the exact approach can be updated.

Anticipated Findings

We anticipate learning how healthcare access and utilization to mental health may mitigate the presence of or severity of certain conditions and how the relationship between healthcare access and utilization is different for various populations (control cohorts).

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Geography
  • Disability Status
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Registered Tier

Research Team

Owner:

HS and Depression in Black Patients

Is there an increased prevalence of depression in Black patients with hidradenitis suppurativa. This research is important because if there is an association between the two diseases, patients can be offered additional support.

Scientific Questions Being Studied

Is there an increased prevalence of depression in Black patients with hidradenitis suppurativa. This research is important because if there is an association between the two diseases, patients can be offered additional support.

Project Purpose(s)

  • Disease Focused Research (hidradenitis suppurativa)

Scientific Approaches

I plan to review all Black patients with HS in the database and compare them with controls (standardized by age, race, and sex). I will then analyze the data using the R software to see if there is an association or not.

Anticipated Findings

My anticipated findings from the study are that there will be an association between HS and Depression in black populations. My findings will allow for a greater understanding of the burden of HS.

Demographic Categories of Interest

  • Race / Ethnicity

Data Set Used

Registered Tier

Research Team

Owner:

Sociocultural Problems that cause Depression in Black Young Women

Existing research often lacks specificity in addressing the unique experiences of young African-American women, neglecting the cultural and societal contexts that shape their mental health. By bridging this gap, the research aims to provide valuable insights that can inform tailored…

Scientific Questions Being Studied

Existing research often lacks specificity in addressing the unique experiences of young African-American women, neglecting the cultural and societal contexts that shape their mental health. By bridging this gap, the research aims to provide valuable insights that can inform tailored interventions and support systems to enhance the mental well-being of young African-American women. We hypothesize that there is a significant association between specific sociocultural factors and the prevalence and severity of depression among young African-American women. Through a comprehensive examination of factors such as racial identity, gender roles, socioeconomic status, and community dynamics, we anticipate identifying distinct patterns that contribute to the manifestation and persistence of depressive symptoms in this demographic.

Project Purpose(s)

  • Educational

Scientific Approaches

African American women and sociocultural factions that cause depression will be the datasets.
ANOVA will be a research method to collect data.
Some tools that will be used:
Programming analysis
Excel
R

Anticipated Findings

We hypothesize that there is a significant association between specific sociocultural factors and the prevalence and severity of depression among young African-American women. It can contribute to this field because it highlights the sociocultural factors that cause biological changes within African American young African-American women. Research on this topic is not as prevalent as other causes of mortality within this community.

Demographic Categories of Interest

  • Race / Ethnicity
  • Sexual Orientation
  • Geography
  • Disability Status
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Registered Tier

Research Team

Owner:

Social determinants of lung cancer risk among Black and Hispanic Adults

Identifying the factors that explain sex and racial/ethnic differences in lung cancer risk among NH Black and Hispanic individuals is critical for the development of tailored interventions that address lung cancer and related disparities in these populations. While social determinants…

Scientific Questions Being Studied

Identifying the factors that explain sex and racial/ethnic differences in lung cancer risk among NH Black and Hispanic individuals is critical for the development of tailored interventions that address lung cancer and related disparities in these populations. While social determinants of health (SDOH) are important factors necessary for understanding minority health and health disparities, little is known about their relative and combined influence on lung cancer risk. This new information is key for the development of effective approaches to mitigate lung cancer disparities affecting NH Black and Hispanic individuals.
We aim to: 1) Compare the relative influence of sociodemographic characteristics and SDOH on lung cancer risk among NH Black and Hispanic adults and 2) Identify the combined influence of SDOH on sex differences in lung cancer risk among NH Black and Hispanic adults. Findings from this study will identify new therapeutic targets for public health intervention development.

Project Purpose(s)

  • Disease Focused Research (Lung Cancer Risk)
  • Population Health
  • Social / Behavioral

Scientific Approaches

We will use data collected as part of the All of Us epidemiological study, a national effort supported by the National Institutes of Health with the goal of accelerating research and improving health. We will measure lung cancer risk as a composite score of tobacco use and lung cancer family history. Our aims include cross-sectional examinations from a large sample of NH Black and Hispanic men and women. First, we will identify the SDOH that, relative to sociodemographic characteristics, have the strongest associations with lung cancer risk. These analyses will indicate how specific SDOH may overpower the effect of protective sociodemographic factors, thereby informing diminished gains from current lung cancer prevention approaches among NH Black and Hispanic individuals. Second, we will examine how patterns of SDOH inform lung cancer risk among NH Black and Hispanic adults.

Anticipated Findings

These analyses will highlight how unique combinations of SDOH inform sex by race/ethnicity differences in lung cancer risk among NH Black and Hispanic adults. This study’s findings will advance our understanding of diminished gains for NH Black and Hispanic individuals from lung cancer prevention approaches. Further, this study will identify new potential therapeutic targets for clinical and public health intervention development. Thus, findings from this project will have a sustained and powerful impact on the field of lung cancer disparities research.

Demographic Categories of Interest

  • Race / Ethnicity

Data Set Used

Registered Tier

Research Team

Owner:

  • Adriana Espinosa - Early Career Tenure-track Researcher, City University of New York (CUNY)
  • Lesia Ruglass - Mid-career Tenured Researcher, City University of New York (CUNY)

Collaborators:

  • Shraddha Pattanshetti - Graduate Trainee, Rutgers, The State University of New Jersey

ADRD & Black African Adults Nativity

To assess the sociocultural factors within the distinct subgroups constituting the prevalence of Alzheimer's Disease and Related Dementias (ADRD) among U.S. Black population

Scientific Questions Being Studied

To assess the sociocultural factors within the distinct subgroups constituting the prevalence of Alzheimer's Disease and Related Dementias (ADRD) among U.S. Black population

Project Purpose(s)

  • Disease Focused Research (ADRD)
  • Social / Behavioral
  • Ethical, Legal, and Social Implications (ELSI)

Scientific Approaches

The data source for this study will be the All of Us Research Workbench. We have created a workspace entitled “ADRD & Black African Adults Nativity” on the All of Us Researcher Workbench. and used dataset builder to create datasets, and export the data to Jupyter Notebooks for analysis using R and Python V3.0.

Anticipated Findings

The prevalence of Alzheimer's Disease and Related Dementias (ADRD) among native-born and non-native-born US Black individuals would be different by age, race, and socioeconomic/environmental factors including income, education, and neighborhood characteristics

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Sex at Birth
  • Gender Identity
  • Sexual Orientation
  • Geography
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Controlled Tier

Research Team

Owner:

Emotional distress, low back pain and opioid use in black adults

To what extent are emotional distress factors such as depression, anxiety, anger, and irritability inadequately assessed in older black adults with chronic pain, potentially leading to underdiagnosis and suboptimal treatment outcomes?

Scientific Questions Being Studied

To what extent are emotional distress factors such as depression, anxiety, anger, and irritability inadequately assessed in older black adults with chronic pain, potentially leading to underdiagnosis and suboptimal treatment outcomes?

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

This study is a retrospective study that utilizes patients' medical records along with ICD codes for the identification of emotional distress factors and chronic pains. The analysis will involve descriptive and statistical analysis to investigate the relationship between emotional distress factors and chronic pains in older black adults.

Anticipated Findings

We hypothesize that emotional distress, including depression, anxiety, anger, and irritability, which are frequently associated with chronic pain in older black adults, are not adequately assessed, leading to suboptimal treatment outcomes and reduced overall quality of life for this population

Demographic Categories of Interest

  • Race / Ethnicity
  • Age

Data Set Used

Registered Tier

Research Team

Owner:

Heart Disease and its Social Determinants of Health for Black and Hispanic Males

How do the proponents of heart disease affect Black and Hispanic males in Metropolitan Communities? How do these communities provide a higher risk level than other ruralized or non-urban settings? How can these answers change the way we approach health…

Scientific Questions Being Studied

How do the proponents of heart disease affect Black and Hispanic males in Metropolitan Communities?
How do these communities provide a higher risk level than other ruralized or non-urban settings?
How can these answers change the way we approach health research in order to insure health equity for underrepresented populations?

Project Purpose(s)

  • Disease Focused Research (Heart Disease)
  • Population Health
  • Social / Behavioral
  • Educational
  • Drug Development
  • Methods Development
  • Control Set
  • Ancestry
  • Ethical, Legal, and Social Implications (ELSI)

Scientific Approaches

The main scientific approaches I plan to use are Qualitative Datasets, Surveys and Questionnaires, Qualitative Interviews from secondary data sources,
observations based on genomic data, and data analysis in order to provide results toward adequate solutions for treatment.

Anticipated Findings

According to research provided by the Office of Minority Health, African Americans were 30 percent more likely to die from heart disease than non-Hispanic whites in 2019 (Pre-COVID). Although African American adults are 30 percent more likely to have high blood pressure, they are less likely than non-Hispanic whites to have their blood pressure under control. In general, Hispanic American adults are less likely to have coronary heart disease than non-Hispanic white adults. My contributions to these finding will provide more recent data for both Black and Hispanic males, and provide reasons as to why these effects are consistently happening due to a variety of social determinants.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Access to Care
  • Income Level

Data Set Used

Controlled Tier

Research Team

Owner:

  • Floyd Hobson - Project Personnel, National Pan-Hellenic Council

Black Bodies Matter - Diabetes, PAD, Limb Loss

Aim 1: What are the factors influencing early onset (before age 45), co-morbid peripheral artery disease in Black and White patients with diabetes? Aim 2: What is the relationship between the screening practices and limb amputation in patients with diabetes…

Scientific Questions Being Studied

Aim 1: What are the factors influencing early onset (before age 45), co-morbid peripheral artery disease in Black and White patients with diabetes?
Aim 2: What is the relationship between the screening practices and limb amputation in patients with diabetes and concomitant peripheral artery disease?
Aim 3: What factors influence practice decisions to amputate a lower limb in Black and nonblack patients in the United States?
Rationale: Evidence suggests that Black patients have a higher prevalence of asymptomatic PAD and are less aware of symptoms. This issue collectively puts them at increased risk for a delay in care. Black persons diagnosed with chronic kidney disease in midlife ages (45-64) while white persons were diagnosed with kidney disease in later life (65-74), partially attributable to better access to control diabetes. It is anticipated that this will also hold true for PAD.

Project Purpose(s)

  • Population Health
  • Other Purpose (This study aims to understand cultural, environmental, and decision- making factors that contribute to disparities in diagnosis and treatment for PAD with diabetes and subsequent limb loss.)

Scientific Approaches

Study Design: The proposed observational cohort study using the All of Us (AoU) Researcher Workbench.

Sampling Frame: Data from 2018 through the most currently available date at the time of study initiation.
Inclusion Criteria: Participants with a diagnosis of Type II diabetes, at least 18 years of age at the time of agreement to participate in the AoU initiative.
Exclusion Criteria: Any record without a documentation of race
Estimated Sample Size and Power calculation: This is an observational study using an established database. Our previous research using this data source found an estimated 202,000 persons with Type

Type II diabetes in AoU Data Workbench. Based on CDC reporting,6 9% (an estimated 18,180 of the AoU records), of persons with Type II diabetes also will have PAD, and of these 4.6% (an estimated 836 of the AoU records) will possibly have a limb amputation. These are adequately large numbers to support statistical analyses of the proposed hypotheses.

Anticipated Findings

H1A: A decrease in the documentation of screening for PAD will be associated with a higher rate of limb amputations among Black patients compared to other racial and ethnic groups.
H1B: A decrease in the documentation of screening for PAD will be associated with a higher rate of limb amputations in Black patients with diabetes less than 45 years of age compared to other racial and ethnic groups.
H2: An increase in the documentation of vascular treatment services will be associated with a decrease in limb amputations at all stages of diabetes with concomitant PAD.
H3: An increase in the documentation of screening for PAD using an ankle brachial index (ABI) will be associated with a decrease in rate of limb amputations.
H4: An increase in documentation of adherence to the American Heart Association Clinical Practice Guidelines for critical limb ischemia will be associated with a decrease in the rate of limb amputations.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Geography

Data Set Used

Registered Tier

Research Team

Owner:

Collaborators:

  • Hongyan Xu - Mid-career Tenured Researcher, Augusta University

HIV-Infected Black Women

I would like to look at the number of samples and variety within the Workbench for Black women specifically infected with HIV. I would like to look at their demographics, geographical locations, treatment opportunities, and other topics that have/can affect…

Scientific Questions Being Studied

I would like to look at the number of samples and variety within the Workbench for Black women specifically infected with HIV. I would like to look at their demographics, geographical locations, treatment opportunities, and other topics that have/can affect their morbidity and mortality.

Project Purpose(s)

  • Disease Focused Research (Human immunodeficiency virus infectious disease)

Scientific Approaches

A qualitative study will be completed using Python software to collect and analyze the data set, when additional data sets are needed, a comparative analysis will be conducted to observe any similarities and differences between black women living in rural areas, if possible, Alabama and those who are in more urban and metropolitan areas.

Anticipated Findings

The anticipated findings will show that black women in the South, or rural areas are less likely to have access to care, have more obstacles, and have higher rates of incidence as well as mortality. This will be a contribution in the field in hopes of finding more ways to increase engagement and decrease the obstacles black women in rural areas are facing.

Demographic Categories of Interest

  • Race / Ethnicity
  • Geography
  • Access to Care

Data Set Used

Registered Tier

Research Team

Owner:

Collaborators:

  • Chitra Nayak - Mid-career Tenured Researcher, Tuskegee University

Mental Health- Blacks v. Whites

.

Scientific Questions Being Studied

.

Project Purpose(s)

  • Educational

Scientific Approaches

.

Anticipated Findings

.

Demographic Categories of Interest

  • Age

Data Set Used

Controlled Tier

Research Team

Owner:

Lung cancer risk among Black and Hispanic people

What are the most relevant social determinants of health for informing tobacco use and lung cancer history among NH Black and Hispanic individuals? How do these social determinants of health relate to each other to inform tobacco use and lung…

Scientific Questions Being Studied

What are the most relevant social determinants of health for informing tobacco use and lung cancer history among NH Black and Hispanic individuals? How do these social determinants of health relate to each other to inform tobacco use and lung cancer history among these groups?

Project Purpose(s)

  • Social / Behavioral

Scientific Approaches

We will use data from The Basics, Lifestyle, personal and family health history and social determinants of health questionnaires. We will use regression models, dominance analysis, latent profile analyses and mixed effects regressions.

Anticipated Findings

We anticipate to find that stress and discrimination are very strong predictors of tobacco use and accordingly, lung cancer risk. However, other social determinants of health such as housing insecurity might exacerbate the influence of discrimination and stress. Findings will help identify intervention targets for reducing lung cancer-related disparities among NH Black and Hispanic populations.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Sex at Birth
  • Gender Identity
  • Sexual Orientation
  • Geography
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Registered Tier

Research Team

Owner:

  • Adriana Espinosa - Mid-career Tenured Researcher, City University of New York (CUNY)

Colorectal cancer in Blacks

The long-term goal of the study is to determine the CRC screening uptake among US Black immigrants. Another objective is to determine the barriers and facilitators of CRC screening uptake among Black immigrants .

Scientific Questions Being Studied

The long-term goal of the study is to determine the CRC screening uptake among US Black immigrants. Another objective is to determine the barriers and facilitators of CRC screening uptake among Black immigrants .

Project Purpose(s)

  • Disease Focused Research (colorectal cancer)
  • Social / Behavioral
  • Educational

Scientific Approaches

I will do a secondary analysis of the AllofUs dataset to determine factors which corelate with CRC screening coverage in black immigrants

Anticipated Findings

1. CRC screening uptake among US immigrants.
2. The barriers and facilitators of CRC screening uptake among Black immigrants.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age

Data Set Used

Registered Tier

Research Team

Owner:

Response to Tamoxifen between Black and White women

What effect does the drug treatment, Tamoxifen have on the body's response to breast cancer in middle-aged black women compared to middle-aged white women?

Scientific Questions Being Studied

What effect does the drug treatment, Tamoxifen have on the body's response to breast cancer in middle-aged black women compared to middle-aged white women?

Project Purpose(s)

  • Disease Focused Research (female breast cancer)
  • Drug Development

Scientific Approaches

- Discrete Quantitative data
- Research methods used are PubMed etc.
- The tool will be used for accurate data analysis. After inputting the information needed for the study, R programming would analyze and organize the data into a statistical test.
- Breast cancer is a type of cancer that develops in the breast tissue, affecting mainly women. HER2 receptors are proteins found on the surface of breast cells that aid in cell growth and division when functioning abnormally. In about 20% of breast cancers, there is an overexpression of the HER2 receptor.
- Type of statistical study is an Observational research
- The type of statistical test is a Correlational test

Anticipated Findings

The expected outcome from the statistical analysis would be a positive correlation between the two variables. Middle-aged black women would have a lower treatment rate compared to middle-aged white women due to their body nature of having an aggressive signaling to receptor response with the HER2.

Demographic Categories of Interest

This study will not center on underrepresented populations.

Data Set Used

Controlled Tier

Research Team

Owner:

Black Women, Sexual Violence, and Sexual Health Decision-Making

The research I am conducting is in an exploratory phase. This endeavor is a focused exploration of primarily qualitative data and some quantitative data concerning sexual health decision-making and psychological and emotional well-being among African American/Black women survivors of sexual…

Scientific Questions Being Studied

The research I am conducting is in an exploratory phase. This endeavor is a focused exploration of primarily qualitative data and some quantitative data concerning sexual health decision-making and psychological and emotional well-being among African American/Black women survivors of sexual violence/assault. Participants that identify as women (cis, trans, and gender expansive) will be included in this research. This exploration is important because it will allow us to understand better the many variables (e.g., sociocultural, interpersonal, systemic racism, and medical-related traumas and protective factors) that impact black women survivors' help-seeking and decision-making processes. The scientific question I hope to have more direction on, via exploration of this data set, is how the aforementioned variables impacted sexual health decision-making, and what impact has this had on black women's sexual, psychological, and emotional health outcomes.

Project Purpose(s)

  • Social / Behavioral

Scientific Approaches

A sequential mixed methods-interpretative phenomenological analysis (IPA) approach will be used to explore the sociocultural, interpersonal, systemic, and medical-related traumas sexual health decision-making. Given that this research is in an exploratory phase, qualitative data will be analyzed first, using thematic analysis to discover significant themes among participants. Quantitative data will be analyzed second for relationships among variables. Lastly, the quantitative data will be embedded into the qualitative findings to understand the phenomena impacting sexual health decision-making among Black/African American women survivors of sexual violence. The project will use a combination of the survey data and the EHR to discover new phenomena impacting sexual health decision-making and psychological and emotional well-being among Black/African American women survivors.

Anticipated Findings

The working hypothesis is that there is a predictive relationship between all these variables; however, IPA is needed to discover phenomena that might better explain the relationships between the variables and to better inform clinical practice and interventions with this population.

Findings from both of these research projects will substantiate the importance of this research topic and be used to apply for independent grants that will continue to support this research past its exploratory and pilot phases. The ultimate hope is that findings from this research will help develop more innovative and timely community and medical interventions that seek to serve better Black women survivors who are not receiving (adequate) sexual health support and interventions.

Demographic Categories of Interest

  • Race / Ethnicity
  • Sex at Birth
  • Gender Identity
  • Sexual Orientation
  • Geography

Data Set Used

Registered Tier

Research Team

Owner:

Pharmaceutical Companies Targeting Black Communities for Profit

The scientific question we hope to answer by using the data is whether pharmaceutical companies use biased algorithms to exploit black communities for profit. We hope to address the cultural and societal impact of such machine learning models in health…

Scientific Questions Being Studied

The scientific question we hope to answer by using the data is whether pharmaceutical companies use biased algorithms to exploit black communities for profit. We hope to address the cultural and societal impact of such machine learning models in health care. This proposed project will enable personalized models for health care to best treat minority populations subject to behavioral health disorders, regardless of their insurance status, serious mental illness status, or any other legally protected class.

Project Purpose(s)

  • Population Health
  • Social / Behavioral
  • Educational
  • Methods Development
  • Ethical, Legal, and Social Implications (ELSI)

Scientific Approaches

Use the electronic health records available through AIM-AHEAD, such as the database of OCHIN, and All of US, to characterize the cohort of Black patients in health record diagnosed with serious mental illness such as bipolar disorder, schizophrenia, or borderline personality disorder. Conduct a value chain analysis of how psychiatric medicine is distributed to minority populations across the United States and develop a cross-walk methodology using natural language processing to link the cohort of patients with serious mental illness to the database of hospital prices. The next step will be to conduct statistical hypothesis testing to assess the policy impacts of our analysis: quantify whether the cohort of Black patients is subject to diagnoses which require higher or lower medication, higher or lower cost, and whether these patients reside in areas with higher or lower median income, alongside analyzing other social and environmental determinants and behavioral health.

Anticipated Findings

The project has the potential to expose dangerous algorithms within the pharmaceutical industry and suggest new ones that benefit minority patients. This research hopes to enable health care models that best treat minority populations subject to behavioral diagnoses no matter any legally protected status.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Disability Status
  • Access to Care
  • Income Level

Data Set Used

Registered Tier

Research Team

Owner:

Duplicate of Urban Health Disparities among Black and Latino People

Globally, more than half of the world’s population lives in urban areas; and urbanization negatively affects the social determinants of health (WHO, 2022). Access to healthy foods and a healthy and safe environment are especially affected by urbanization; and barriers…

Scientific Questions Being Studied

Globally, more than half of the world’s population lives in urban areas; and urbanization negatively affects the social determinants of health (WHO, 2022). Access to healthy foods and a healthy and safe environment are especially affected by urbanization; and barriers to these necessities facilitate negative mental and physical health outcomes. Environmental hazards and food access barriers disproportionately affect racial and ethnic minority groups in urban areas, especially Black and Latino people. This analysis will utilize the All of Us Research data to analyze how urbanization contributes to health disparities in Black and Latino people who reside in a New York City borough.

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

This study will utilize secondary quantitative data from the All of Us Research dataset. Multiple logistic regression will be used to determine associations between the negative aspects of urbanization and its effect on health outcomes of Black and Latino urbanites. The regression models will be adjusted for race/ethnicity, gender identity, socioeconomic status, and other determinants of health.

Anticipated Findings

It is hypothesized that this study will find that urbanization negatively affects the social determinants of health, specifically food and healthcare access and a safe environment; and thus increases the likelihood of developing Type II diabetes, asthma, obesity, and mental health issues such as depression and anxiety. WHO (2022) anticipates that by 2050 more than 68% of the worlds population will live in urban areas. This study will add knowledge about health disparities in already marginalized populations that are most affected by the rate of urban sprawl.

Demographic Categories of Interest

  • Race / Ethnicity
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Controlled Tier

Research Team

Owner:

  • Jade Bedell - Other, New York Medical College School of Health Sciences and Practice

Functional GI Disorders Among Black/AA Patients

The aim of this study is to explore and characterize common functional GI diseases among patients who identify as African American or Black. We are interested specifically in irritable bowel syndrome (IBS). As a part of this research study, we…

Scientific Questions Being Studied

The aim of this study is to explore and characterize common functional GI diseases among patients who identify as African American or Black. We are interested specifically in irritable bowel syndrome (IBS). As a part of this research study, we will be comparing comorbidities, demographic, socioeconomic information, and medical management among among patients who identify as African American or Black, as well as Caucasians. Minority populations are more likely to face health disparities and issues related to access to care, however they are frequently underrepresented in clinical research. Research focused on investigating diseases which affect people from a an array of racial and ethnic backgrounds is one way to help take steps towards ensuring quality of clinical care for all patients.

Project Purpose(s)

  • Disease Focused Research (Functional GI Diseases)

Scientific Approaches

To complete this study, we plan to utilize several datasets, based primarily on four different cohort populations from the All of Us database, including a cohort of Black patients with IBS, a cohort of Black patients without IBS, a cohort of White patients with IBS, and one without. By creating an age and sex matched control group, we will not only be able to compare differences in overall health status, but also differences in patient socioeconomic status, perceptions of the health care which they receive based on survey data, as well as basic demographics. Following the creation of the cohorts, we will use the exported data, All of US notebook and statistical software to identify whether or not there are meaningful differences between the groups.

Anticipated Findings

There have not been many studies of functional GI diseases, or IBS in general which have been specifically focused on Black populations, however one epidemiological study from 2005 demonstrated that IBS occurs less frequently among African Americans, although the disease IBS affects quality of life among both ethnicities, the degree of impairment is similar. A second population-based study has been published which explored racial differences in the overlap between IBS and dyspepsia between African American and Caucasians. Comorbid functional GI disorders other than dyspepsia have not been explored. Specific perceptions of care have also not been thoroughly explored in this population. Our study utilizing All of Us Data will contribute to the field by creating a more holistic picture of the characteristics, medical management and health perspectives of black patients living with IBS, using a generalizable population database.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Sex at Birth
  • Gender Identity

Data Set Used

Registered Tier

Research Team

Owner:

Collaborators:

  • Kyle Staller - Early Career Tenure-track Researcher, Mass General Brigham

Functional GI Disorders Among Black/AA Patients

The aim of this study is to explore and characterize common functional GI diseases among patients who identify as African American or Black. We are interested in comparing comorbidities, demographic and socioeconomic information, and medical management among this group. Minority…

Scientific Questions Being Studied

The aim of this study is to explore and characterize common functional GI diseases among patients who identify as African American or Black. We are interested in comparing comorbidities, demographic and socioeconomic information, and medical management among this group. Minority populations are more likely to face health disparities and issues related to access to care, however are frequently underrepresented in clinical research. Research focused on Investigating diseases, which towards to ensure better quality of clinical care for all patients.

Project Purpose(s)

  • Disease Focused Research (Functional GI Diseases)

Scientific Approaches

To complete this study, we plan to utilize several datasets, based primarily on four different cohort populations from the All of Us database, including a cohort of Black patients with IBS, a cohort of Black patients without IBS, a cohort of White patients with IBS, and one without. By creating an age and sex matched control group, we will not only be able to compare differences in overall health status, but also differences in patient socioeconomic status, perceptions of the health care which they receive based on survey data, as well as basic demographics. Following the creation of the cohorts, we will use the exported data, All of US notebook and statistical software to identify whether or not there are meaningful differences between the groups.

Anticipated Findings

There have not been many studies of functional GI diseases, or IBS in general which have been specifically focused on Black populations, however one epidemiological study from 2005 demonstrated that IBS occurs less frequently among African Americans, although the disease IBS affects quality of life among both ethnicities, the degree of impairment is similar. A second population-based study has been published which explored racial differences in the overlap between IBS and dyspepsia between African American and Caucasians. Comorbid functional GI disorders other than dyspepsia have not been explored. Our study utilizing All of Us Data will contribute to the field by creating a more holistic picture of the characteristics, medical management and health perspectives of black patients living with IBS, using a generalizable population database.

Demographic Categories of Interest

  • Race / Ethnicity
  • Age
  • Sex at Birth
  • Gender Identity

Data Set Used

Registered Tier

Research Team

Owner:

Urban Health Disparities among Black and Latino People

Globally, more than half of the world’s population lives in urban areas; and urbanization negatively affects the social determinants of health (WHO, 2022). Access to healthy foods and a healthy and safe environment are especially affected by urbanization; and barriers…

Scientific Questions Being Studied

Globally, more than half of the world’s population lives in urban areas; and urbanization negatively affects the social determinants of health (WHO, 2022). Access to healthy foods and a healthy and safe environment are especially affected by urbanization; and barriers to these necessities facilitate negative mental and physical health outcomes. Environmental hazards and food access barriers disproportionately affect racial and ethnic minority groups in urban areas, especially Black and Latino people. This analysis will utilize the All of Us Research data to analyze how urbanization contributes to health disparities in Black and Latino city dwellers.

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

This study will utilize secondary quantitative data from the All of Us Research dataset. Multiple logistic regression will be used to determine associations between the negative aspects of urbanization and its effect on health outcomes of Black and Latino urbanites. The regression models will be adjusted for race/ethnicity, gender identity, socioeconomic status, and other determinants of health.

Anticipated Findings

It is hypothesized that this study will find that urbanization negatively affects the social determinants of health, specifically food and healthcare access and a safe environment; and thus increases the likelihood of developing Type II diabetes, asthma, obesity, and mental health issues such as depression and anxiety. WHO (2022) anticipates that by 2050 more than 68% of the worlds population will live in urban areas. This study will add knowledge about health disparities in already marginalized populations that are most affected by the rate of urban sprawl.

Demographic Categories of Interest

  • Race / Ethnicity
  • Access to Care
  • Education Level
  • Income Level

Data Set Used

Controlled Tier

Research Team

Owner:

  • Jade Bedell - Other, New York Medical College School of Health Sciences and Practice

HIV risk of Black behaviorally bisexual women

I will use this workbench to help recruit participants for a research study. The study is intended to explore the lived experiences of women who have sex with women and men (WSWM) and the connection between their relationship dynamics and…

Scientific Questions Being Studied

I will use this workbench to help recruit participants for a research study. The study is intended to explore the lived experiences of women who have sex with women and men (WSWM) and the connection between their relationship dynamics and sexual practices, in relation to HIV risk.

The specific question I intend to study is: How do the relationship dynamics and sexual practices of Black behaviorally sexual women influence HIV risk?

Looking at the relationship dynamics of WSWM (i.e. self-esteem, power, and intimate partner violence) may help gain insight on the sexual risk behaviors of WSWM’s that exist in those relationships, and how they may be related to increased HIV risk. Identifying these dynamics and behaviors may inform future clinical cultural competence interventions which address the problem associated with the phenomena of sexual practices within WSWM relationships, and increased HIV risk within these relationships, which result from unprotected sex.

Project Purpose(s)

  • Population Health
  • Social / Behavioral

Scientific Approaches

I plan to conduct a qualitative study, using a phenomenological approach. Participant qualification will be deemed by completion of a participant inclusion survey. All study questions will be answered in a virtual interview format (i.e. Zoom).

Anticipated Findings

This study was designed to address the limited research that currently exists on HIV prevention and testing interventions for women who have sex with women, to also include interactions with men. The anticipated findings from the study intend to identify which dynamics of participant relationships (i.e self-esteem, power) may contribute to sexual decision making. The intent is to identify patterns in sexual decision making and consequent sexual-risk taking behaviors that may increase risk in contracting or transmitting HIV.

Demographic Categories of Interest

  • Race / Ethnicity
  • Sex at Birth
  • Gender Identity
  • Sexual Orientation
  • Geography
  • Others

Data Set Used

Registered Tier

Research Team

Owner:

  • DaJaneil McCree - Early Career Tenure-track Researcher, University of Michigan
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