Researcher Workshops and Public Input
To ensure that researchers have a voice in the direction and focus of the program, we are co-designing a research platform that will facilitate a variety of health research initiatives. Our researcher workshops are one of many tools that we are using to harness the unprecedented breadth and diversity of data being collected to advance precision medicine.
In March 2018, the All of Us Research Program held its first research workshop to identify key research priorities. Workshop attendees used crowdsourced research concepts to create additional research questions, refine common data elements, and identify priorities for future versions of the All of Us protocol. In total, the workshop developed more than 1,000 use cases and 3,500 unique data elements.
Output included tools such as the Health Conditions and Cross-Cutting Themes Chart (above), which is a visual representation of the scientific framework formulated during the workshop based on the use cases with nine Health Conditions (vertical bars) and seven Cross-Cutting Themes (horizontal bars). It identifies common data types needed to address research questions that span multiple health conditions.