All of Us Publications

Amplifying Their Voices: Advice, Guidance, and Perceived Value of Cancer Biobanking Research Among an Older, Diverse Cohort.

Amplifying Their Voices: Advice, Guidance, and Perceived Value of Cancer Biobanking Research Among an Older, Diverse Cohort.

Ewing AT, Turner AD, Sakyi KS, Elmi A, Towson M, Slade JL, Dobs AS, Ford JG, Erby LH.

J Cancer Educ. 2020 Sep 25. doi: 10.1007/s13187-020-01869-0. Online ahead of print.

PMID: 32975747

Diversity and inclusion for the All of Us research program: A scoping review

Diversity and inclusion for the All of Us research program: A scoping review.

Mapes BM, Foster CS, Kusnoor SV, Epelbaum MI, AuYoung M, Jenkins G, Lopez-Class M, Richardson-Heron D, Elmi A, Surkan K, Cronin RM, Wilkins CH, Pérez-Stable EJ, Dishman E, Denny JC, Rutter JL; All of Us Research Program.

PLoS One. 2020 Jul 1;15(7):e0234962. doi: 10.1371/journal.pone.0234962. eCollection 2020.

PMID: 32609747 Free PMC article.

Leveraging the health information technology infrastructure to advance federal research priorities.

Leveraging the health information technology infrastructure to advance federal research priorities.

Zayas-Cabán T, Abernethy AP, Brennan PF, Devaney S, Kerlavage AR, Ramoni R, White PJ.

J Am Med Inform Assoc. 2020 Apr 1;27(4):647-651. doi: 10.1093/jamia/ocaa011.

PMID: 32090259 Free PMC article.

The “All of Us” Research Program.

The “All of Us” Research Program. New England Journal of Medicine 2019;381:668–76. https://doi.org/10.1056/NEJMsr1809937.

Development of Participant Provided Information Modules for the All of Us Research Program

Development of the Initial Surveys for the All of Us Research Program

Cronin RM, Jerome RN, Mapes B, Andrade R, Johnston R, Ayala J, Schlundt D, Bonnet K, Kripalani S, Goggins K, Wallston KA, Couper MP, Elliott MR, Harris P, Begale M, Munoz F, Lopez-Class M, Cella D, Condon D, AuYoung M, Mazor KM, Mikita S, Manganiello M, Borselli N, Fowler S, Rutter JL, Denny JC, Karlson EW, Ahmedani BK, O’Donnell CJ; Vanderbilt University Medical Center Pilot Team, and the Participant Provided Information Committee. Epidemiology. 2019 Jul;30(4):597-608. doi: 10.1097/EDE.0000000000001028. PMID: 31045611; PMCID: PMC6548672.

A Method for Integrating Healthcare Provider Organization and Research Sponsor Systems and Workflows to Support Large-Scale Studies

A Method for Integrating Healthcare Provider Organization and Research Sponsor Systems and Workflows to Support Large-Scale Studies

Campion TR, Pompea ST, Turner SP, Sholle ET, Cole CL, Kaushal R.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:648-655. PMID: 31259020; PMCID: PMC6568055.

Implementation of Informatics to Support All of Us Enrollment Activities

Implementation of Informatics to Support the NIH All of Us Research Program in a Healthcare Provider Organization

Turner SP, Pompea ST, Williams KL, Kraemer DA Jr, Sholle ET, Chen C, Cole CL, Kaushal R, Campion TR

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:602-609. PMID: 31259015; PMCID: PMC6568061.

Implementing a universal informed consent process for the All of Us Research Program

Implementing a universal informed consent process for the All of Us Research Program

Doerr M, Grayson S, Moore S, Suver C, Wilbanks J, Wagner J. Implementing a universal informed consent process for the All of Us Research Program. Pac Symp Biocomput. 2019;24:427-438. PMID: 30963079; PMCID: PMC6417826.

The New Era of Precision Population Health: Insights for the All of Us Research Program and Beyond

The new era of precision population health: insights for the All of Us Research Program and beyond

Lyles CR, Lunn MR, Obedin-Maliver J, Bibbins-Domingo K. The new era of precision population health: insights for the All of Us Research Program and beyond. J Transl Med. 2018;16(1):211. Published 2018 Jul 27. doi:10.1186/s12967-018-1585-5

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Khodyakov D, Bromley E, Evans SK, Sieck K

RAND Corporation, 2018.https://doi.org/10.7249/RR2578