Neha Saxena
Undergraduate Student, All of Us Program Operational Use
1 active project
Duplicate of How to Get Started with Registered Tier Data (tier 5)
Scientific Questions Being Studied
We recommend that all researchers explore the notebooks in this workspace to learn the basics of All of Us Program Data.
What should you expect? This notebook will give you an overview of what data is available in the current Curated Data Repository (CDR). It will also teach you how to retrieve information about Electronic Health Record (EHR), Physical Measurements (PM), and Survey data.
Project Purpose(s)
- Educational
- Methods Development
- Other Purpose (This is an All of Us Tutorial Workspace. It is meant to provide instruction for key Researcher Workbench components and All of Us data representation.)
Scientific Approaches
This Tutorial Workspace contains two Jupyter Notebooks (one written in Python, the other in R). Each notebook is divided into the following sections:
1. Setup: How to set up this notebook, install and import software packages, and select the correct version of the CDR.
2. Data Availability Part 1: How to summarize the number of unique participants with major data types: Physical Measurements, Survey, and EHR;
3. Data Availability Part 2: How to delve a little deeper into data availability within each major data type;
4. Data Organization: An explanation of how data is organized according to our common data model.
5. Example Queries: How to directly query the CDR, using two examples of SQL queries to extract demographic data.
6. Expert Tip: How to access the base version of the CDR, for users that want to do their own cleaning.
Anticipated Findings
By reading and running the notebooks in this Tutorial Workspace, you will understand the following:
All of Us data are made available in a Curated Data Repository. Participants may contribute any combination of survey, physical measurement, and electronic health record data. Not all participants contribute all possible data types. Each unique piece of health information is given a unique identifier called a concept_id and organized into specific tables according to our common data model. You can use these concept_ids to query the CDR and pull data on specific health information relevant to your analysis. See our support article Learning the Basics of the All of Us Dataset for more info.
Demographic Categories of Interest
This study will not center on underrepresented populations.
Data Set Used
Registered TierResearch Team
Owner:
- Francis Ratsimbazafy - Other, All of Us Program Operational Use
- Neha Saxena - Undergraduate Student, All of Us Program Operational Use
- Jun Qian - Other, All of Us Program Operational Use
- Giselle Routhier - Research Fellow, New York University, Grossman School of Medicine
Request a Review of this Research Project
You can request that the All of Us Resource Access Board (RAB) review a research purpose description if you have concerns that this research project may stigmatize All of Us participants or violate the Data User Code of Conduct in some other way. To request a review, you must fill in a form, which you can access by selecting ‘request a review’ below.
