Research Associate, National Alliance for Hispanic Health
1 active project
Hispanic Community Representation
Scientific Questions Being Studied
1. To what extent does the All of Us database reflect the diversity of the United States, particularly as it relates to the proportion of Hispanics in the US and those registered in the database?
2. To what extent is diversity in terms of demographics, disease, health risk, and intersectionality represented within the sample of Hispanic participants in the All of Us Research Program?
Justification: Hispanics represent more than one in six persons in the U.S. (18.5%), 60.7 million people; the nation’s second largest population group compared to non-Hispanic White (60.1%), non-Hispanic Black (12.2%), non-Hispanic Asian (5.6%), non-Hispanic American Indian/Alaska Native (0.7%), and non-Hispanic Native Hawaiian/Other Pacific Islander (0.2%). Thus, it is in the interest of good science and the success of the All of Us Research Program to ensure adequate inclusion of the Hispanic community in the AoU database.
- Other Purpose (This Workspace will be used for the Hispanic Community Representation Demo Project, which will aim to assess the extent to which the Hispanic community, including the plurality and diversity within the community, is represented in the All of Us database. As the Hispanic community is diverse in and of itself, it is important to determine the representation gaps that remain to be addressed in terms of demographics, disease, health risk, and intersectional factors.)
First, we will select the Hispanic cohort from the demographic dataset. We will then summarize the demographic characteristics (age, gender, Hispanic origin, educational attainment, industry/occupation, geography, annual household income, insurance, etc.) of the Hispanic cohort using the self-reported data from the Participant Survey information dataset and compare the findings to the American Community Survey 2020 data set release. Finally, we will highlight any demographic gaps in the Hispanic All of Us participant cohort and potential barriers that may impede and recommendations for targeted enrollment efforts to ensure a study cohort reflective of the general US Hispanic population.
We expect that the Hispanic cohort in the All of Us Research Program reflects the distribution of major Hispanic population centers, diversity of Hispanic subpopulation groups, and a mix of participants from rural and urban centers as well as key economic, educational, health access indicators. Our findings would contribute to the validity of the All of Us research hub as a diverse pool of participants that reflect the diverse composition of the United States and of the Hispanic community itself.
Demographic Categories of Interest
- Race / Ethnicity
- Sex at Birth
- Gender Identity
- Sexual Orientation
- Disability Status
- Access to Care
- Education Level
- Income Level
- Natalia Cañas - Research Associate, National Alliance for Hispanic Health
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