Karen Llave
Graduate Trainee, University of California, Irvine
4 active projects
AYA Cancer Survivors - v7
Scientific Questions Being Studied
I am examining the All of Us data to understand patient-provider communication patterns and preferences among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.
Project Purpose(s)
- Disease Focused Research (cancer)
- Population Health
- Social / Behavioral
Scientific Approaches
First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.
Anticipated Findings
Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.
Demographic Categories of Interest
- Access to Care
Data Set Used
Registered Tier
AYA Cancer Survivors - v6
Scientific Questions Being Studied
I am examining the All of Us data to understand patient-provider communication patterns and preferences among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.
Project Purpose(s)
- Disease Focused Research (cancer)
- Population Health
- Social / Behavioral
Scientific Approaches
First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.
Anticipated Findings
Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.
Demographic Categories of Interest
- Access to Care
Data Set Used
Registered TierAYA Cancer Survivors - Updated
Scientific Questions Being Studied
I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.
Project Purpose(s)
- Disease Focused Research (cancer)
- Population Health
- Social / Behavioral
Scientific Approaches
First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.
Anticipated Findings
Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.
Demographic Categories of Interest
- Access to Care
Data Set Used
Registered TierAYA Cancer Survivors
Scientific Questions Being Studied
I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.
Project Purpose(s)
- Disease Focused Research (cancer)
- Population Health
- Social / Behavioral
Scientific Approaches
First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.
Anticipated Findings
Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.
Demographic Categories of Interest
- Age
- Access to Care
Data Set Used
Registered TierRequest a Review of this Research Project
You can request that the All of Us Resource Access Board (RAB) review a research purpose description if you have concerns that this research project may stigmatize All of Us participants or violate the Data User Code of Conduct in some other way. To request a review, you must fill in a form, which you can access by selecting ‘request a review’ below.
