Karen Llave

Graduate Trainee, University of California, Irvine

3 active projects

AYA Cancer Survivors - v6

I am examining the All of Us data to understand patient-provider communication patterns and preferences among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to…

Scientific Questions Being Studied

I am examining the All of Us data to understand patient-provider communication patterns and preferences among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.

Project Purpose(s)

  • Disease Focused Research (cancer)
  • Population Health
  • Social / Behavioral

Scientific Approaches

First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.

Anticipated Findings

Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.

Demographic Categories of Interest

  • Access to Care

Data Set Used

Registered Tier

Research Team

Owner:

  • Karen Llave - Graduate Trainee, University of California, Irvine

AYA Cancer Survivors - Updated

I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care…

Scientific Questions Being Studied

I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.

Project Purpose(s)

  • Disease Focused Research (cancer)
  • Population Health
  • Social / Behavioral

Scientific Approaches

First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.

Anticipated Findings

Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.

Demographic Categories of Interest

  • Access to Care

Data Set Used

Registered Tier

Research Team

Owner:

  • Karen Llave - Graduate Trainee, University of California, Irvine

AYA Cancer Survivors

I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care…

Scientific Questions Being Studied

I am examining the All of Us data to understand patient-provider communication patterns among adolescent/young adult (AYA) cancer survivors. Prior research shows AYA survivors are at risk of disengaging in their care as they transition from pediatric to adult care settings. Evidence suggests high-quality communication with providers is protective against this disengagement. The questions I hope to answer include: (1) Are there patterns in patient-provider communication by patient age? and (2) What additional factors may be related to patient-provider communication? With the answers to these questions, there may be opportunities for improving healthcare engagement among AYA cancer survivors.

Project Purpose(s)

  • Disease Focused Research (cancer)
  • Population Health
  • Social / Behavioral

Scientific Approaches

First, I will identify a cohort of AYA cancer survivors within the All of Us data. I will explore options for dividing the cohort by age group. It is likely that cell sizes will be too small for reporting aggregated data. As such, I will also explore dividing the cohort by age at diagnosis. If data permits, I will examine differences in access and healthcare utilization.

Anticipated Findings

Taking into account guidelines for transitioning into adult care, I anticipate patient-provider communication to be stronger among older cohorts of AYA survivors compared to younger cohorts. If the contrary is observed, further investigation into communication patterns is needed and may better inform transition practices for AYA survivors.

Demographic Categories of Interest

  • Age
  • Access to Care

Data Set Used

Registered Tier

Research Team

Owner:

  • Karen Llave - Graduate Trainee, University of California, Irvine
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